Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
My Late Mom Left $5 Million Inheritance to My Greedy Brother and Aunts & I Only Got an Envelope with an Address
While my mom battled cancer, I was her caregiver, nursing her until her final days. But when she passed away, my mom split her money between my money-hungry brother and aunts. But it turns out that there was more to the story.
It turns out that inheritance, loss, and family are the ultimate recipes for drama. Let me tell you all about what happened after my mom passed away.
My mom battled with cancer for the longest time. When I look back now, it was something that had been around throughout my early life and then carried on when I enrolled at the community college close to home. Mom was always my best friend, so naturally, I was going to be there every step of the way while she battled this illness.
I just remember the days bleeding into nights when she was sick — something that was in a constant loop. But I also remember that the spoon-feeding and the hand-holding gave her as much comfort as they gave me. And then, on the other side of this story, my brother and aunts only showed up when they needed something. Usually, to have their bills paid.
Cancer patient at home. | Source: Pexels
Or, like the one aunt (while my mom was on a steady decline), she wanted mom’s “contacts” to sort out a new house for her. Because my mom owned a real estate agency. The audacity was unbelievable.
Anyway, Mom tried her hardest, but the illness took over in the end. Now, fast forward to the day of the will reading. All the relatives, the lawyer, and I were sitting in a room like something straight out of a Hallmark movie — think of wood everywhere and a chipped tea set on the scratched surface of an impossibly old coffee table.
I was sipping a cup of weak tea from one of the chipped teacups when the lawyer dropped the bomb. Mom’s savings, about all $5 million of it, was to be split between my brother and my aunts. I choked back the tea, thinking what was happening in the name of heaven. Because I got nothing. Zip. Nada.
Now, I’m sitting there, with tears streaming down my face and onto the white skirt I was wearing — mascara drops staining my clothing. And this greedy bunch did not even bother to hide their smirks.
I was baffled.
Pink and White Tea Set. | Source: Pexels
How on earth could my mom have done this to me? I thought, wiping my nose with the face of my hand. And then, as a classic overthinker, I began to wonder whether I cared enough for her during those final months.
But then, the lawyer stood up and handed me an envelope.
“Your Mom,” he said, “loved you more than anyone.”
Of course, the room gets quiet, and the greedy bunch all look hungrily at the letter. Dearest Lily, it said on the front.
I opened the letter, and an address and a key were written on a single piece of paper.
Now, I’m sitting there and thinking, What the heck, Mom?
But I decided to check it out. Maybe she wanted me to clear out a storage room or something. The lawyer decided to tag along, tight-lipped about everything. So, we got to the address, which turned out to be this hidden gem of a house. A beautiful home with even my favorite flowers planted along the walkway.
Beautiful House | Source: Pexels
Mom had left me a fully paid-for home! And it was clear that she had left her imprint on the place because there were photos of us inside. And another letter on the glass table in the entrance hall — this letter was to spill the beans.
It turns out my mom knew all about how my brother and aunts were the biggest money drains. But she wanted me to have a place to build a future and a family. To make new memories in a place that clearly has her spirit.
As for the money? Well, the letter said that she handed it to them, fully aware that they would blow through it. She wanted to teach them the value of things and focus on family ties. Which was bound to happen when the money was long gone.
But now, I’m standing in my new kitchen, drinking coffee from the coffee machine I always wanted, and I realize that mom’s love was never in the money — no. It was in this home, and I knew that this gift would be more valuable to me than anything else.
Hey, Mom? You still know the best.
Person using a coffee machine | Source: Pexels
What “mom knows best” stories do you have?
But in the meantime, here’s another story for you: When Cora hears a radio advertisement about Mothers and Daughters, she feels compelled to spend time with her husband’s daughter, Mia. But as she prepares for their bonding trip, Cora gets more than she bargained for. If Mia’s not the daughter, who is she?
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