Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
My Mother-in-Law Moved in with Us After Her House Was Flooded – I Was Shocked When I Discovered Her True Motive
When my mother-in-law moved into our home without warning, I thought it was just about a plumbing issue. Turns out, she had another mission. And let me tell you, her tactics were more relentless than I ever imagined.
I came home that evening after a long, exhausting day, craving nothing more than peace and quiet. But as soon as I opened the door, I knew something was wrong. There were boxes everywhere. My heart skipped a beat.
I dropped my bag by the door, carefully stepping over a pile of shoes, and followed the trail of clutter down the hall. That’s when I saw her. My mother-in-law, Jane, was in the guest room, unpacking like it was the most natural thing in the world.
Clothes were strewn across the bed. Her flowery perfume clung to the air, and photos of her cats had already claimed the nightstand.
“Mom?” My voice was tight, a forced calm. “What’s going on?”
Without so much as glancing in my direction, she waved a hand, casually saying, “Oh, didn’t Joe tell you? My house had a little ‘incident.’ Pipes burst and flooded the whole place. I’ll be staying here for a while until it’s sorted.”
I blinked. Flooding? That didn’t sound right. She lived in a freshly renovated house, nothing but top-tier everything. I hadn’t heard a single complaint about it until now.
Before I could even begin to process, Joe appeared behind me. He looked guilty, eyes darting anywhere but at me. “Yeah… about that.” He rubbed the back of his neck, awkwardly shifting his weight. “Mom’s gonna stay with us for a bit. Just until the house gets fixed.”
“And you didn’t think to tell me?” I asked, my glare piercing.
He shrugged like it was no big deal. “It’s only for a little while, babe. You and Mom get along, right?”
Get along? If by “get along,” he meant the passive-aggressive remarks about how we’d been married for six years and still hadn’t given her any grandkids, then sure. We were best friends. But I plastered on a smile, the kind you give when you’re two seconds away from snapping. “Of course. I totally understand.”
Hours later, after I’d pretended everything was fine, I got up for some water. As I passed the kitchen, I heard them talking in hushed voices.
“You didn’t tell her the real reason, did you?” Jane’s voice was sharp, like a knife slicing through the night.
Joe sighed. “No, Mom. I didn’t.”
“Well,” Jane huffed, “I’m here to keep an eye on things. Married this long with no children… someone’s got to figure out what’s going on. Don’t worry, I’ll handle it.”
My stomach twisted. This wasn’t about pipes. She was here to snoop. To pressure me about kids. To “handle” me. I stood frozen in the hallway, blood boiling. What the hell had I just walked into?
The next morning, I woke up with a plan. If Jane wanted to play her little game, I’d play mine. But I wasn’t going to get into a battle of wits with her. No, I was going to kill her with kindness. By 8 a.m., I had already started phase one of my “operation.”
I cleared out our entire master bedroom. Every piece of clothing, every picture frame, every trace of Joe and me was stuffed into the tiny guest room. I even found Jane’s favorite floral bedspread from the back of the linen closet and spread it over the bed like I was preparing a five-star hotel suite.
When I was done, I stood in the doorway, surveying my work. The bedspread was pristine, her cat pictures were lined up on the dresser, and to top it off, I made a “Welcome to Your New Home” basket. Bath bombs, lavender-scented candles, fancy chocolates.
By the time Joe got home from work, I was already sitting in the cramped guest room, arranging our clothes into whatever space I could find. He walked in, his forehead creased with confusion. “Why are you in here?” He peeked around the corner. “Where’s our stuff?”
“Oh, I moved everything,” I said, turning to him with the sweetest smile I could muster. “Your mom deserves the master bedroom, don’t you think? It’s only fair. She needs the space more than we do.”
His eyes widened in disbelief. “You… gave her our bedroom?”
“Of course,” I said with a grin. “She’s family, after all. We’ll be just fine in here.”
Joe stood there, mouth half open, processing what I’d done. But what could he say? Jane was his mother, and I wasn’t technically doing anything wrong. He sighed and walked out of the room without another word.
For the next few days, I made sure Jane was living like royalty. Fresh towels every morning, little snacks placed on the nightstand, and those lavender candles I knew she loved.
She wandered around the house like she owned the place, smiling at me like she’d won. But while Jane was lounging in luxury, Joe was starting to crack. Sharing the guest room was driving him nuts. Not just the lack of space, but his mom’s new obsession with prepping him for fatherhood.
Every morning, without fail, she’d hand him a schedule of vitamins.
“You need to take these, Joe,” she’d say, thrusting a multivitamin at him. “It’s important to get your body ready if you want healthy kids.”
Joe would roll his eyes but take the pills just to keep her quiet.
It didn’t stop there. “Should you really be watching TV at night?” she’d ask over dinner. “That’s not very baby-friendly. You should be reading parenting books. Or exercising. And no more video games! You need to mature, Joe. Fatherhood is serious.”
By day four, I found Joe sitting on the edge of the bed, staring at a stack of parenting books his mom had ordered online.
“I think I’m losing it,” he muttered, holding up a book titled “What To Expect When You’re Expecting.” “She expects me to read this.”
I couldn’t help but smile. “Well, Joe,” I said, suppressing a laugh, “you did say we’d be just fine, didn’t you?”
It was relentless. Jane had taken things up a notch. One evening, she handed Joe a neatly typed list of “fertility-boosting” foods. Kale, quinoa, grilled salmon—no more burgers, no more pizza. She smiled sweetly as if she was doing him the world’s greatest favor.
“Your future kids will thank you,” she chirped.
Joe stared at the list like it was a death sentence. “Wait, no pizza? Ever?”
“That’s right, dear,” she said, patting his shoulder. “I’ve planned all your meals for the week. You’ll feel so much better once you start eating clean.”
That night at dinner, we sat around the table eating dry salmon and tasteless kale. Jane watched Joe like a hawk, her eyes flicking from his plate to his face. He shifted uncomfortably, picking at his food.
“Joe,” she started, “did you take your vitamins this morning?”
He sighed, stabbing a fork into the kale. “Yeah, Mom. I took them.”
“And what about the gym? Did you make time for that? You know, you’ve put on a little weight. It’s important to be in shape if you want to be a good father.”
I couldn’t help it. I kicked him under the table to stop myself from bursting out laughing. He shot me a look, his expression torn between frustration and desperation. After days of this, it was finally getting to him.
Later that night, once Jane had gone to bed, Joe turned to me, rubbing his temples. His voice was low, almost pleading. “I can’t do this anymore, Tiana. The guest room, the vitamins, the baby talk… I’m going insane.”
I bit my lip, trying to suppress a smile. “You have to admit,” I said, failing to keep the amusement out of my voice, “it’s kind of funny.”
His eyes narrowed. “It’s not funny.”
I let out a small laugh. “Okay, okay, it’s a little funny.”
Joe groaned and collapsed onto the bed. “I booked her a room at the hotel down the street. I can’t take another day of this.”
The next morning, he broke the news at breakfast.
“Mom, I’ve booked you a nice hotel nearby until the repairs at your house are done. You’ll be much more comfortable there.”
She blinked, clearly surprised. “But I’m perfectly fine here! And besides, isn’t it time you two got serious about giving me grandkids?”
Joe’s jaw clenched. “Mom, we’ll decide that when we’re ready. For now, the hotel is best for everyone.”
For a moment, Jane just stared at him. Then, realizing she had no leg to stand on, she reluctantly nodded. “Well… if you insist.”
By the end of the day, she was gone. The house was ours again.
As the door clicked shut behind her, Joe collapsed onto the couch with a dramatic sigh of relief. “Finally.”
I grinned, sinking down beside him. “So… kale for dinner?”
He groaned. “Never again.”
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