Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Tallulah, Bruce Willis’ daughter, shared a heartfelt message about her dad as he faces a challenging battle with dementia. She expressed her deep love and support for him during this tough time.
Tallulah Willis (left) and Bruce Willis (Getty Images)
Tallulah, Bruce Willis’ daughter, recently shared an update on how her family is coping with his dementia diagnosis. Bruce, 69, has frontotemporal dementia (FTD), a rare type of dementia that affects behavior and language and gets worse over time.
Tallulah admitted that she’s just starting to really deal with her emotions about her dad’s condition, after trying to avoid them before. On Instagram, she posted pictures of them together, saying, “I love this guy so much. It’s hard to feel these emotions, but I’m thankful I can now instead of pushing them away.”
She also shared some old photos of them hugging, having dinner, and looking through his old magazine covers, calling them memories “from the forever archives.” Last month, she spoke on the Today Show, saying that while Bruce is stable, it’s a tough situation with good and bad days, but there’s still a lot of love in their family.
Tallulah, Bruce Willis’ daughter, shared that her dad’s diagnosis has taught her to use her time more wisely and appreciate every moment she spends with her family, especially with him.
She said, “It’s made me realize not to take any moment for granted, and I really believe we’d be best friends. I think he’s very proud of me. You have to live in the moment and be present.”
In March 2022, Bruce was first diagnosed with aphasia, a condition that affects communication skills. Later, his other daughter, Rumer, shared that he got a more specific diagnosis of frontotemporal dementia (FTD), a rare and more aggressive type of dementia.
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