Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Fiesty Toddler Doesn’t Like Her Father Talking Back – Her Response Is Hilarious
We meet four-year-old Emma in a charming suburban neighborhood. Emma is a lively and intelligent youngster who loves her father, David. Emma, on the other hand, has a strong sense of self and enjoys speaking her mind, particularly when things don’t go her way.
In a lighthearted game of hide-and-seek one bright afternoon, Emma is being teased by David. Emma takes offense at his jest about her hiding place and resolves to flip the joke back on him. She gives her dad a playful smile and invites him to play a new game called “talking back.”
Every time David makes fun of her or answers in a humorous way in this new game, Emma swiftly responds with her own take on “talking back.” David finds it cutesy and funny at first, but when Emma starts to respond with more sass and intelligence, he starts to think he might have found his match.
Emma’s “talking back” intensifies over the day into a string of surprising and humorous comebacks that make David fight to keep his cool. Emma enjoys outwitting her father, whether it be by making up her own hilarious sentences or by mimicking his tone.
David develops a greater appreciation for Emma’s fierce personality as the game progresses, as well as a better knowledge of her developing independence and inventiveness. David welcomes the happiness of this special bonding experience even though it can be difficult to keep up with his quick-witted kid.
Emma’s boisterous activities have reinforced the bond between father and daughter, who are both weary from laughing by the end of the day. Knowing that there’s never a dull moment when Emma is around, David is amazed by his feisty toddler’s amazing personality as they get ready for bed.
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