Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
‘DWTS’ star, mocked as orphan for spotty skin, dies at 29, – adoptive mom dies next day
The ballet world is mourning the death of Dancing with the Stars’ Michaela Mabinty DePrince, an inspirational ballerina who beat staggering odds to become one of the world’s most famous dancers.
Michaela, an orphan from war-torn Sierra Leone, was a dancer with the Boston Ballet who gained widespread notoriety after starring in the 2011 documentary First Position. She died September 10 at only 29.
Adding to the family’s tragic loss, Michaela’s adoptive mom – who rescued Michaela from the filthy shelter where she was told she was “too ugly” to find a family – died only 24 hours later.
After her father was brutally killed in war-torn Sierra Leone and her mother died from fever, four-year-old Michaela Mabinty DePrince was abandoned by her uncle in a shelter where staff every day tried to break her spirit.
Known then as “Number 27” a young Michaela had little hope of finding a family as she had vitiligo, a condition that causes patches of skin to lose pigmentation.
The young girl, called “the devil child” because of her patchy skin, was told repeatedly that she was too ugly to be picked.
“We were all ranked from the most favored to the least, and I was at the very bottom for being rebellious and having a skin condition called vitiligo, which produces white freckles on my neck and chest,” Michaela said, adding she slept on a grass sleeping mat with “Number 26.”
Aside from the vomit-stained nightgown she was wearing, all she had was a magazine, which according to Glamour had (literally) blown onto her face. And on the cover was a ballerina en pointe – a dancer supporting all her body weight on the tips of her toes.
“The dancer looked beautiful and happy, that’s what caught my eye,” Michaela tells Glamour. “I wanted to be happy.”
And the crumpled old photo of the ballerina was the first thing she handed Elaine DePrince, who took her to her new home in New Jersey.
“There was so much love right away,” said Michaela, who over the next two decades would be the prima ballerina on the cover of magazines. “I had never been surrounded by something like that.”
‘My life is proof’
Michaela’s passion for dancing was ignited at a young age, and she pursued her dreams with remarkable dedication.
In 2011, Michaela became one of the stars of First Position, a documentary that followed six gifted dancers leading up to the competition for a place in the prestigious American Ballet Theatre’s Jacqueline Kennedy Onassis School of Ballet (JKO)
She not only earned a spot but was also awarded a scholarship to study at JKO.
The same year the award-winning documentary was released, Michaela also appeared on Dancing with the Stars.
“My life is proof that no matter what situation you’re in, as long as you have a supportive family, you can achieve anything,” Michaela said.
In 2012, the talented ballerina joined the renowned Dance Theatre of Harlem, where she continued to shine as a rising star. Her exceptional talent and grace later led her to the Dutch National Ballet, where the War Child Ambassador further established herself as a formidable presence in the ballet world.
While she was living in Amsterdam and training for The Nutcracker, she received a call, inviting her to travel to New Orleans and dance in Beyonce’s hour-long video, Lemonade, which was released in 2016.
Speaking with the Wall Street Journal of meeting the pop sensation, Michaela said, “She walked up to me and said, ‘It’s such an honor to have you here.’ I was really cheesy and said, ‘The honor is mine.’ I was on cloud nine.”
‘Beacon of hope’
On September 10, her family released a heartbreaking message about the principal soloist with the Boston Ballet.
“Rest in Power,” the post starts about the dancer who died on September 10. “With pain in our hearts, we share the loss of star ballerina Michaela Mabinty DePrince, whose artistry touched countless hearts and whose spirit inspired many, leaving an indelible mark on the world of ballet, and beyond.”
The Facebook post describes Michaela as an inspiration who “stood as a beacon of hope for many, showing that no matter the obstacles, beauty and greatness can rise from the darkest of places.”
The cause of her death has not yet been released.
Mom ‘spared the pain’
Only 24 hours after Michaela’s sudden death, her doting adoptive mom Elaine DePrince died on September 11 “during a routine procedure in preparation for a surgery.”
A family statement on Facebook explains that at the time of Elaine’s death, she was unaware that her daughter had died.
“As unbelievable as it may seem, the two deaths were completely unrelated. The only way we can make sense of the senseless is that Elaine, who had already lost three children many years ago, was by the grace of God spared the pain of experiencing the loss of a fourth child.” The message continues, “What the family is going through right now is truly unimaginably painful. Grieving two family members who died within a 24-hour period is tragic and devastating. We continue to ask for privacy…”
Rest in peace Michaela and Elaine. Please share your thoughts with us and then share this story so we can all send a lot of love to the family and friends of this mother-daughter duo.
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