Céline Dion Shares Raw Video of Stiff-Person Syndrome Crisis in Never-Seen Footage from New Documentary

In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.

Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.

After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).

Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.

Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”

In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?

The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.

“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”

Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.

Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”

Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”

Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.

Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.

Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”

Rоdео stаr’s 3-yеаr-оld sоn diеs twо wееks аftеr trаgiс rivеr ассidеnt

Levi Wright, the young son of rodeo star Spencer Wright, has died.

The three-year-old died after suffering a trаumаtic brain injury from a near-drowning incident on May 21.

Levi was hospitalized at a Salt Lake City hospital after accidentally driving a toy tractor into a river near the family’s home on May 21. Local law enforcement found Levi unconscious about a mile downstream.

Although he was initially declared brain dеаd and not expected to survive, the boy began showing signs of improvement.

“LEVI WOKE UP! I am shook, we don’t know much but the doctor said it was okay for me to get excited about that and I AM! My baby is so tough!” his mother Kallie Wright wrote on Facebook.

Unfortunately, the following day the results of an MRI “wasn’t good.”

“We’re shattered but it is just images that suggest a certain quality of life. Our real teller of all will be what Levi does over the course of a few days,” Kallie shаrеd.

As Levi continued his fight in the hospital, his family and friends continued asking for prayers.

On June 2, Kallie shаrеd devastating news.

“After several sleepless nights, lots of research, multiple conversations with the world’s best neurologists & millions of prayers we are here in the face of our biggest fear,” she wrote. “Levi showed us just enough to buy us time for all of this. We prayed those things were him defying odds & proving to us that he wanted to stay here but we see now he wanted to give us time to find peace with letting him go.”

After countless tests, scans, and consultations, the Wright family took Levi off life support.

The following day, June 3, a family friend, Mindy Sue Clark, confirmed on Facebook that Levi had died.

“I cannot even begin to explain how hard the last two weeks have been. From the moment my phone rang the night of his accident, to last night receiving the message that he had to go. I don’t want to focus on the bad or sad, even though it feels likе someone ripped my heart out and squeezed it right in front of me. I want to focus on the many miracles we all got to bear witness to in those 12 days.”

“The most perfect three year old there ever was. So perfect we didn’t get to keep him. This baby boy moved mountains the last 12 days. He brought so many people together. In a world so dark, we got to see light at the hands of a child. He’s everything his mom and dad could’ve wanted him to be.”

Our prayers are with the Wright family during this extremely difficult time.

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